We all know IT. Stephen King made sure of that.

His IT lurked in the shadows, waiting to jump out and terrify us when we least expected it.

But the IT that lives in our house is different.

Our IT is Lewy body dementia.

One day, you’re helping your loved one with appointments, medications, reminders, and logistics. The next, you’re helping with personal care—bathing, dressing, toileting, grooming. Tasks that are deeply private. Tasks that many of us never imagined doing for someone we love.

It’s most important getting the right diagnosis as it helps caregivers know what to expect—and how best to support their loved one.

It feels like I’m pushing uphill, against a wall that’s too heavy to move, every single day. And I’m not alone. I hear it from other caregivers, too: the care team interactions can be exhausting and, more often than not, feel like a fight.