This journey isn’t for the faint at heart
This space was created to bring together a variety of resources to support you on your caregiving journey… because let’s be honest, sometimes we need all the help we can get.
Here, you’ll find tools, insights, and information that offer additional options for assistance, along with deeper, real-life guidance to help you make sense of the day-to-day challenges (and yes… there are a lot of them).
Whether you’re looking for practical support, a different way to approach something, or just trying to better understand what’s going on, these resources are here to help you feel a little more confident—and a little less frazzled.
Take what you need, skip what you don’t, and come back anytime.
Outreach
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Resources
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Support
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Clinics
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Trials
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Outreach ✳︎ Resources ✳︎ Support ✳︎ Clinics ✳︎ Trials ✳︎
The links below are provided for informational purposes only. I do not specifically endorse any one organization, service, or resource over another. I’m a big believer in learning as much as you can, exploring different perspectives, and finding the information that best fits your unique situation. The more informed we are, the better equipped we can be to ask questions, make decisions, and advocate for the people we love.
The Lewy Body Dementia Association (LBDA) is the leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD), the second most common form of neurodegenerative dementia affecting approximately 1.4 million people in the United States alone.
The Parkinson’s Foundation makes life better for people with Parkinson’s disease (PD) by improving care and advancing research toward a cure. Lewy Body Dementia is part of the Parkinson’s “umbrella”, known as dementia with Lewy Body.
Our mission is to increase awareness, education, and resources around Dementia and Brain Health. In addition, we fund groundbreaking Dementia research and engage individuals, families, and communities impacted by Dementia through programs that spotlight art, music, movement, touch, and more.
The mission of the National Institute of Neurological Disorders and Stroke is seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease for all people.
Mayo Clinic is the largest integrated, not-for-profit medical group practice in the world, where relentless research turns into earlier diagnoses and new cures.
At Mayo Clinic, experts work together to solve the most challenging unmet needs of patients.