“Betelgeuse, Betelgeuse, Betelgeuse!”
“It's showtime!” — Delia Deetz, Beetlejuice Beetlejuice

For caregivers, that phrase can feel surprisingly familiar.

Not because we're summoning a mischievous ghost, but because sometimes all it takes is the announcement of company coming, a family gathering, a doctor's appointment, or a social event—and suddenly it's showtime.

Understanding living benefits isn’t just about insurance. It’s about understanding options. It’s about knowing what tools may already be available to help create breathing room during some of life’s most overwhelming moments.

Lewy, Meet Todd. Todd, this is Lewy.

Apparently you’ll be hanging out?

The moments when your loved one becomes fearful…
overwhelmed…
or just plain scared of what’s happening around them.

The moments when your loved one becomes fearful…
overwhelmed…
or just plain scared of what’s happening around them.

Clinical trials can make a different … in the long run.

Enter: The Dry Erase Pen

Simple. Small. Easy to tuck into your bag.

But powerful.

Because when so much feels out of your control…
this is one thing you can take ownership of.

Taking a little bit of wisdom from a sweet little blue fish … just keep swimming.

One of the hardest — and most confusing — parts of caregiving is this question:

“Is this the disease… or is this who they’ve always been?”

It really is okay to say no. No is a complete sentence in the caregiving world!

It’s almost Valentine’s Day - Let’s talk chocolate!

When the world felt like it was falling apart, Hazel was there.

There’s the hustle and bustle, the constant movement, the off-schedule days that blur together, and the steady hum of activity that feels impossible to turn down.

I miss the things we used to do. I miss the person he used to be. I miss the version of “us” that existed before dementia changed the rules.

I see the wobble, the slight jerking of his body, and I know what’s next.

We all know IT. Stephen King made sure of that.

His IT lurked in the shadows, waiting to jump out and terrify us when we least expected it.

But the IT that lives in our house is different.

Our IT is Lewy body dementia.

One day, you’re helping your loved one with appointments, medications, reminders, and logistics. The next, you’re helping with personal care—bathing, dressing, toileting, grooming. Tasks that are deeply private. Tasks that many of us never imagined doing for someone we love.

It’s most important getting the right diagnosis as it helps caregivers know what to expect—and how best to support their loved one.

It feels like I’m pushing uphill, against a wall that’s too heavy to move, every single day. And I’m not alone. I hear it from other caregivers, too: the care team interactions can be exhausting and, more often than not, feel like a fight.

This big, lovable goofball burst into our lives with energy, curiosity, and a stubborn streak that rivals mine. I’ll be honest - my heart wasn’t ready.