There’s the hustle and bustle, the constant movement, the off-schedule days that blur together, and the steady hum of activity that feels impossible to turn down.

I miss the things we used to do. I miss the person he used to be. I miss the version of “us” that existed before dementia changed the rules.

We all know IT. Stephen King made sure of that.

His IT lurked in the shadows, waiting to jump out and terrify us when we least expected it.

But the IT that lives in our house is different.

Our IT is Lewy body dementia.

One day, you’re helping your loved one with appointments, medications, reminders, and logistics. The next, you’re helping with personal care—bathing, dressing, toileting, grooming. Tasks that are deeply private. Tasks that many of us never imagined doing for someone we love.

It’s most important getting the right diagnosis as it helps caregivers know what to expect—and how best to support their loved one.